[Participatory research into autism spectrum disorder].

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Tác giả: Sylvie Chokron, Caroline Demily, Adeline Lacroix, Marie Pieron

Ngôn ngữ: eng

Ký hiệu phân loại: 616.8527 Diseases of nervous system and mental disorders

Thông tin xuất bản: France : L'Encephale , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 166542

Participatory research applied to autism spectrum disorder is an emerging research methodology. In this type of project, researchers and clinicians collaborate with autistic people, their families and professionals on research projects that are jointly determined, making the most of everyone's strengths, skills and knowledge. The resulting work addresses issues identified as priorities by all partners. The aim is to bridge the gap between research, clinical practice and the experience of autistic people. This opinion piece reviews this methodology, its scientific and societal value, and the ethical issues and limitations it raises. It also sheds light on the particular attention that needs to be paid to methodological aspects and the resources that need to be put in place to ensure that everyone can play their part to the full, scientists and autistic people alike.
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