Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient
structured interviews with severely affected ME/CFS patients
how past events contribute to severe ME/CFS
a comparison of moderately ill, severely ill, and very severely ill
case reports of ME/CFS in children. 2. A healthcare provider's view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms
(2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill
(4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire
(5) cardiac dimensions and function in patients
(6) an easier tilt test
and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS
(2) a sitting tilt test for orthostatic intolerance
(3) the benefits of IVIgG
(4) risks and protective factors in suicidality
(5) malnutrition and overcoming it
(7) partnerships between patients, caregivers, and providers, and the use of technology
(8) a holistic model of care, "Compassion in Practice
and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective
(2) the impact of ME/CFS on psychosocial dynamics
(3) the educational needs of school-aged
and (4) the economic impact of ME/CFS