Parent experiences of child loss in a paediatric intensive care unit on human connection and compassionate care.

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Tác giả: Sara Alcón-Nájera, María Teresa González-Gil

Ngôn ngữ: eng

Ký hiệu phân loại: 616.123028 Diseases of cardiovascular system

Thông tin xuất bản: Spain : Enfermeria intensiva , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 462783

INTRODUCTION: The death of a child in an Intensive Care Unit (ICU) is a rare event, the main causes being failed resuscitation efforts, brain death or limitation of the therapeutic effort. The family interpretation of this experience has a significant impact on mourning. Knowledge of the elements that condition this interpretation, is fundamental to be able to accompany and care. AIMS: General: to explore the experience of families who have suffered the loss of a child in the PICU. Specific: to describe the experience of "human connection and family centred compassionate care". METHODOLOGY: A qualitative phenomenological study was carried out in the PICU of a high complexity hospital. Thirteen interviews were conducted (11 mothers/9 fathers), with an average duration of 60 min until thematic saturation. Data were analysed following Van Manen's hermeneutic approach. RESULTS: Compassionate family-centred care is based on the human connection between care team and family system with the objectives of: recognising care as a family affair, promoting a collaborative approach to care and strengthening family bonds. Their achievement requires: informing/training parents about the disease process and care, involving them in decision-making, facilitating their participation in care, generating spaces for honest communication with the care team, facilitating care respire and sibling visits, making, promoting "family magic spaces", and generating family memories. CONCLUSIONS: The experience of losing a child in the PICU is conditioned by the care team's approach to the management of the families' suffering. The co-creation of a relationship space centred on their needs and mediated by sincere communication and real collaboration is valued as a valuable gift.
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