Clinically meaningful outcomes in Alzheimer's disease and Alzheimer's disease related dementias trials.

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Tác giả: Elena M Fazio, Kristina K Hardy, Nicole Kidwiler, Kristina A McLinden, Luke E Stoeckel, Benfeard Williams

Ngôn ngữ: eng

Ký hiệu phân loại: 333.822 Coal

Thông tin xuất bản: United States : Alzheimer's & dementia (New York, N. Y.) , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 471094

 UNLABELLED: On March 12-14, 2024, the National Institute on Aging (NIA) together with the National Institute of Neurological Disorders and Stroke (NINDS) led a workshop exploring clinically meaningful changes in the context of Alzheimer's Disease and Alzheimer's Disease Related Dementias (AD/ADRD) clinical trials (https://www.nia.nih.gov/research/dbsr/workshops/clinically-meaningful-outcomes-ad-adrd-trials). The goals were to identify research gaps, opportunities, and tools to advance patient-centered, equitable assessment of clinically meaningful change focused on biomarker status, cognition, and everyday function. The workshop fostered robust, multidisciplinary discussion between lived experience experts, advocates, researchers, clinicians, funders, payers, and regulators. The workshop addressed the criteria used to assess whether an intervention has had a clinically meaningful impact, including consideration of both benefit and harm. Here, we report on (1) criteria to consider for development, testing, and selection of clinically meaningful outcomes in AD/ADRD clinical trials
  (2) methods to validate and customize clinically meaningful outcomes that are fit-for-purpose
  and (3) practices that will ensure that clinically meaningful outcomes are applicable to diverse populations.
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