Self-assessment of amyotrophic lateral sclerosis functional rating scale on the patient's smartphone proves to be non-inferior to clinic data capture.

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Tác giả: Petra Baum, Sarah Bernsen, Matthias Boentert, Isabell Cordts, Johannes Dorst, Torsten Grehl, Julian Grosskreutz, René GüNTHER, Dagmar Kettemann, Yasemin Koc, Jan Christoph Koch, Péter Körtvélyessy, Paul Lingor, André Maier, Thomas Meyer, Christoph Münch, Jenny Norden, Susanne Petri, Annekathrin Rödiger, Peggy Schumann, Susanne Spittel, Robert Steinbach, Laura Steinfurth, Maximilian Vidovic, Bertram Walter, Jochen H Weishaupt, Patrick Weydt, Ute Weyen

Ngôn ngữ: eng

Ký hiệu phân loại: 709.012 *To 4000 B.C.

Thông tin xuất bản: England : Amyotrophic lateral sclerosis & frontotemporal degeneration , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 548333

OBJECTIVE: To investigate self-assessment of the amyotrophic lateral sclerosis functional rating scale-revised (ALSFRS-R) using the patient's smartphone and to analyze non-inferiority to clinic assessment. METHODS: In an observational study, ALSFRS-R data being remotely collected on a mobile application (App-ALSFRS-R) were compared to ALSFRS-R captured during clinic visits (clinic-ALSFRS-R). ALS progression rate (ALSPR)-as calculated by the monthly decline of ALSFRS-R-and its intrasubject variability (ALSPR-ISV) between ratings were used to compare both cohorts. To investigate non-inferiority of App-ALSFRS-R data, a non-inferiority margin was determined. RESULTS: A total of 691 ALS patients using the ALS-App and 1895 patients with clinic assessments were included. Clinical characteristics for the App-ALSFRS-R and clinic-ALSFRS-R cohorts were as follows: Mean age 60.45 (SD 10.43) and 63.69 (SD 11.30) years ( CONCLUSIONS: Patients using a mobile application for remote digital self-assessment of the ALSFRS-R revealed younger age, earlier disease course, and faster ALS progression. The finding of non-inferiority of App-ALSFRS-R assessments underscores, that data collection using the ALS-App on the patient's smartphone can serve as additional source of ALSFRS-R in ALS research and clinical practice.
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