Early Young Adult Death Underscores the Need for Adolescent and Young Adult Transition Programs in Neurofibromatosis Type 1.

• Tác giả: Aditi Gupta, David H Gutmann, Ethan Hillis, Inez Y Oh, Tina Tarnawsky
• Ngôn ngữ: eng
• Ký hiệu phân loại: 920.71 Men
• Thông tin xuất bản: United States : The Journal of pediatrics , 2025
• Bộ sưu tập: NCBI
• ID: 59648

Tóm tắt

There are few centers with combined pediatric and adult neurofibromatosis 1 practices and transition of care programming. Using an electronic health records-based approach, we found an early death peak in the fourth decade of life largely owing to malignancy, underscoring the need for integrated neurological training and practice across the lifespan.