UK Patient Access to Low-Protein Prescription Foods in Phenylketonuria (PKU): An Uneasy Path.

• Tác giả: Cameron Arbuckle, Catherine Ashmore, Sarah Bailey, Giana Blaauw, Wahid Chaudhry, Clare Dale, Anne Daly, Breanna Downey, Jane Dundas, Charlotte Ellerton, Sharon Evans, Suzanne Ford, Lisa Gaff, Joanna Gribben, Anne Grimsley, Melanie Hill, Anita MacDonald, Laura Murphy, Camille Newby, Natalia Oxley, Rachel Pereira, Alex Pinto, Rachel Skeath, Alexa Sparks, Simon Tapley, Allyson Terry, Georgina Wood, Alison Woodall, Katie Yeung
• Ngôn ngữ: eng
• Ký hiệu phân loại: 636.0885 Animal husbandry
• Thông tin xuất bản: Switzerland : Nutrients , 2025
• Bộ sưu tập: NCBI
• ID: 67667

Tóm tắt

 BACKGROUND: Special low-protein foods are essential in the dietary treatment of phenylketonuria (PKU). In the UK, these are available on prescription through the General Practitioners (GPs) and distributed via nutritional home delivery companies or pharmacies. METHODS: A 58-item online non-validated semi-structured questionnaire was emailed to British Inherited Metabolic Disease Group (BIMDG) dietitians and dietetic support workers (DSW)/administrators working in PKU to ascertain the main system issues and errors with the supply of low-protein prescription foods (LPPF). RESULTS: 73% ( CONCLUSIONS: The supply of LPPF for PKU in the UK is problematic
  it may adversely affect the ability of patients to adhere to dietary management, and a review investigating patient access to LPPF is urgently required.