A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.

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Tác giả: Jennifer L Bumble, Meghan M Burke, Kelli A Sanderson

Ngôn ngữ: eng

Ký hiệu phân loại:

Thông tin xuất bản: England : Journal of applied research in intellectual disabilities : JARID , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 698910

BACKGROUND: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the critical care that parents provide to their adult children with intellectual and/or developmental disabilities, we aimed to understand the supports parents need to be effective caregivers. METHOD: Qualitative data (write-in responses) from a national survey completed by 315 parents of adults with intellectual and/or developmental disabilities were analysed using thematic analysis. RESULTS: Four themes emerged from the data, including the need fortangible support, social support, help navigating disability services and resources, and assistance with future planning. CONCLUSIONS: Our findings point to the need for financial compensation for parent caregivers of adults with intellectual and/or developmental disabilities, enhanced disability services, and spaces for families to connect and share resources.
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