Rare care - Cross-sector care coordination.

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Tác giả: Theresa Abbott, Sue Baker, Gareth Baynam, Stephanie Broley, Daniella Dye, Amanda Newell, Joanne Siffleet, Kaila Stevens

Ngôn ngữ: eng

Ký hiệu phân loại:

Thông tin xuất bản: Netherlands : European journal of medical genetics , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 701202

Rare and undiagnosed diseases collectively represent a global health priority, presenting distinct challenges for healthcare systems due to their low prevalence, cumulative frequency, and complex care requirements. The impact of rare and undiagnosed diseases on children and their families extends beyond physical and mental health, affecting every aspect of their lives. This paper outlines the development of an innovative Model of Care that emphasises cross-sector care coordination as an approach to enhance the health and wellbeing of Western Australian children living with rare and undiagnosed diseases. Detailing insights gained will support and guide healthcare professionals to create services that improve outcomes for people living with rare diseases and undiagnosed diseases and their families.
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