OBJECTIVE: We estimated the prevalence of potential functional disability among those with systemic lupus erythematosus (SLE), by receipt of disability benefits. METHODS: Participants (N=442
mean age, 46.2
91.7% women
82.6% Black) were recruited from a population-based SLE cohort. Indicators of potential disability included: functioning impairments [Short Physical Performance Battery score 10 ≤ age-corrected NIH Toolbox Fluid Cognition score <
77.5 (1.5 SD below the mean)]
activity limitations [physical functioning T-scores <
35 (1.5 SD below the mean)
at least some difficulty performing at least one of the instrumental activities of daily living (IADLs) or basic activities of daily living (BADLs)]
and participation restrictions [any vs. no reported effect of health on ability to work
restricted community mobility]. We performed multivariable logistic regression models predicting potential disability indicators by self-reported receipt of disability benefits and then obtained adjusted prevalence estimates using post-estimation margins. RESULTS: Those who reported receiving disability benefits (45.6%) vs. not (54.4%) were more likely to have impairments in functioning [physical performance (71.3% vs. 50.0%, CONCLUSION: Receipt of disability benefits may be an incomplete marker of functioning. A substantial proportion of those not receiving benefits have impairments, limitations, and restrictions that should be addressed.