Peer Navigation for HIV-Associated Kaposi Sarcoma in Kenya: The Power of the Survivor's Voice.

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Tác giả: Helen Byakwaga, Linda Chemtai, Sigrid M Collier, Esther E Freeman, Samson Kiprono, Celestine Lagat, Jeff Martin, Toby Maurer, Emily Mulanda, Jesse Opakas, Elyne Rotich, Aggrey Semeere, Fredrick Shiravika, Alexis G Strahan, Morvarid Zehtab

Ngôn ngữ: eng

Ký hiệu phân loại:

Thông tin xuất bản: United States : JCO global oncology , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 726349

PURPOSE: Sub-Saharan Africa bears a disproportionate share of the global burden of HIV- associated Kaposi's sarcoma (KS), with high morbidity and mortality rates influenced by stigma, delayed diagnosis, and limited access to care. This study examines Peer Navigation, through both personal and clinical perspectives, as a potential intervention to improve outcomes for those living with KS in western Kenya. PATIENTS AND METHODS: This study centers on the lived experience of one KS survivor who became a Peer Navigator in western Kenya. The narrative captures his journey from diagnosis to treatment and the subsequent impact of guiding others through their healthcare journey as a Peer Navigator. RESULTS: Between October 2021 and July 2024, the Peer Navigator provided support to 77 patients. These interactions led to improvements in patient knowledge, reduced feelings of social isolation, renewed hope for recovery, and increased confidence in treatment options. CONCLUSION: Peer Navigation plays a crucial role in improving outcomes for patients living with HIV- associated KS. By integrating the survivor's voice, this model of care delivery provides invaluable emotional and social support, fostering improved patient-reported outcomes and encouraging treatment adherence, thereby offering a transformative model for care delivery.
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