'I Have my Beliefs, but Then I Have my Reality': Reflections of Black and South Asian Parents Living in England on Screening and Genetic Diagnosis in Pregnancy.

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Tác giả: Rashida Baptiste, Rachael Buabeng, Lyn S Chitty, Jane Fisher, Melissa Hill, Lily Islam, Kerry Leeson-Beevers, Michelle Peter

Ngôn ngữ: eng

Ký hiệu phân loại:

Thông tin xuất bản: England : Prenatal diagnosis , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 727736

OBJECTIVES: Black and South Asian women in the UK face disproportionately worse pregnancy and maternal outcomes. Yet, they are underrepresented in research. Understanding their attitudes towards prenatal tests (screening tests and diagnostic genetic tests) is critical for offering equitable prenatal care. METHODS: Focus groups examined attitudes towards prenatal testing amongst Black and South Asian parents. Discussions were analysed using reflexive thematic analysis. RESULTS: Twelve Black and 15 South Asian parents participated in four focus groups. Four themes were identified: 'The desire for information', 'The circle of trust', 'Faith and culture as navigators', and 'Knowledge and understanding of genetics'. Black and South Asian parents were open to prenatal screening tests, valuing the information about their baby's health. However, most opposed invasive testing because of the risks of harm to the baby. Wanting to be prepared, trust in healthcare, family influence and understanding of genetics shaped attitudes. Faith played a significant and varied role, with Muslim and Christian beliefs influencing decision-making. CONCLUSION: This study underscores the need for culturally respectful prenatal care and the importance of building trust between healthcare services and Black and South Asian communities. It also highlights the value of including people from underrepresented populations in research for supporting health equity.
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