Measuring Outcomes for Community Partner Engagement: The Case of the High-Fidelity Wraparound Program for Pediatric Type 1 Diabetes.

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Tác giả: Lauren Jones, Ingrid M Libman, Christine A March, Radhika Muzumdar, Kenneth Nash, Amy G Nevin, Justin Schreiber

Ngôn ngữ: eng

Ký hiệu phân loại:

Thông tin xuất bản: United States : Diabetes spectrum : a publication of the American Diabetes Association , 2025

Mô tả vật lý:

Bộ sưu tập: NCBI

ID: 749198

OBJECTIVE: The purpose of this article is to describe the processes for convening and engaging an advisory board to guide the conduct of a research study of the Type 1 Diabetes Wraparound Program (T1DWP) and associated outcomes. RESEARCH DESIGN AND METHODS: We recruited a diverse advisory board ( RESULTS: We received 10 ± 3 survey responses per meeting, with representation from every role at each meeting. The overall stakeholder satisfaction score increased from 4.5 at baseline to 5.0 at month 6 and was maintained at 5.0 at month 24 as the research team responded to feedback. Average scores for specific processes of engagement were high: expectation setting (4.6 ± 0.3), co-learning (4.6 ± 0.3), transparency (4.6 ± 0.3), and decision-making (4.7 ± 0.2). Changes to the T1DWP study resulting from advisory board input included adding nine additional patient-reported measures and specific diabetes resources and programming. Furthermore, the board contributed to hiring of T1DWP study staff, fundraising activities, and clinical integration of the T1DWP, demonstrating stakeholder empowerment and knowledge translation to the clinical setting. CONCLUSION: Our processes led to several meaningful contributions to the research study. This experience illustrates the willingness and importance of partnering with stakeholders to help shape resources and programs in pediatric diabetes intervention research.
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